An Introduction

With no known family of hearing loss, it was a shock to learn of having children with bilateral sensineural hearing loss, meaning that it is loss of hair cells in the cochlea, therefore it is irreversible. Here is our story:

It is a blessing that our state law mandates a newborn hearing screening. It detected a loss in both A and R. As a follow up with A, her testing came back inconclusive, but when R was born 2 years later with a confirmed mild to moderate loss, we had A retested, and confirmed a moderate loss. Proceeding her scheduled testing, her speech began to decline, and with a greater loss than R, there is a bit of a suspicion that she may have had some progressive loss.

Within six months of R’s diagnosis of hearing loss, both girls were fitted with hearing aids and are continuing to adapt to the world around them.

In the world of hearing or deaf, A and R do not fit either, but thrive right in the middle, at hard of hearing. Their losses may confuse those that are unfamiliar with hearing loss, because even without their hearing aids, they can hear some, and they are able to communicate verbally, but they still struggle. With the assitance of hearing aids, they are able to access speech and hear the spoken language, but it cannot be mistaken for a full audio correction, because it will never be 100%.

We may have to do things a little bit differently, but they can do anything everyone else can do, except fully hear. It’s not a disability, but a special part of their identity.

In this blog, it is my goal to journal our journey as hearing parents to hard of hearing children. It is my goal to share what we learn along the way, the struggles to triumphs, and the pride I share in being a mother to two beautiful girls that have hearing loss!

 

All text and images are copyright to HEAR IN THE MIDDLE. Please do not use any content without exclusive permission. Thank you. 

Advertisements

One thought on “An Introduction

  1. Hi Samantha. Your post is very moving. It must be really difficult for you to deal with your girls’ hearing loss. It’s wonderful that you can stay home with them. I didn’t work for 8 years to stay home with my kids; it was the best time of my life. Your girls will appreciate having their mom beside them to guide them.
    How did you learn how to blog. I think I would like to try it. Good luck with this one.
    BTW i made some laundry soap with a recipe I found on the Internet and it is fabulous. I hope you are still working on that project. We will be having a winter market as well, When you get things going, let me know.
    Please keep in touch. Is there anyway to know when you’ve written a new post? Thanks so much for telling me about this blog. I will definitely follow you.

I would love to hear from you! All comments welcomed.

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s